Arthritic happenings

So you know I have rheumatoid arthritis,  right? You know I developed it after eating a bad egg sandwich on Boxing Day 2005 in Barcelona, right? I’ve been sort of rediagnosed with Ankylosing Spondylitis now, because a year ago it began to affect my left eye. And you may or may not know that in the last six weeks I started 2 new medications. Methotrexate and Humira.
The methotrexate came first. It’s technically a chemotherapy drug. I take a low dose once a week.  It makes my hair thin and my stomach feel rough and my body weary. It didn’t do much for my pain or inflammation. However it works with the Humira,  which I started last week, and is meant to increase the length of time the Humira works.
I took Humira for the first time last week. I have to inject myself fortnightly.
The day after my first injection was awful. All my bad spots throbbed with pain. But the second day was amazing. My pain was reduced by a third to a half. Then on Friday I took my methotrexate again and it was pretty awful.  My arthritis pain was still much reduced but I spent the weekend battling nausea, exhaustion, and a really itchy scalp. Saturday was a wash. Sunday was half a wash, but by Monday I was mostly okay.
Hopefully when I take my next injection on Tuesday it will be a little easier and I will be able to walk freely and sit on the floor with my kid and start doing yoga again.
There are scary parts too. These drugs suppress my immune system,  because inflammatory conditions like this occur when your body attacks itself so that needs to stop that from happening. Since I live with a small germ factory this is a little scary. But it’s a risk I’ve decided to take because right now that same germ factory has a mom who can’t do very much a lot of the time and that’s not cool.
This is an exciting and scary time. I’m hopeful and anxious in equal parts. But I can walk more easily, and maybe my cute shoes will fit better now that my feet aren’t so swollen all the time.


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